Wow! Sorry ladies, I didn't get notification of your messages from May 4th at all and just got your messages today. Hopefully, I'll cover all of your questions, if not post it again............
Sfamily, I'm glad that you did some homework to find a physician who may help you. I totally understand that you don't want to self diagnose, and I don't necessarily recommend it, however, if you aren't getting any help from the dr.'s it doesn't hurt to try and it sounds like you're having success! When you are able also thicken at night. Although your lo takes the feed okay, it's still compromising the airway. Also, please don't cut all of your nipples, your lo really should be able to get the liquid through a regular nipple even if he plays with it a little at first. Either way, I'm glad it's going well.
Sugarmama, the hiccups/sneezing, hacking coughing, choking coughing are all classic signs of dysphagia. I'm glad you got your referral for the pediatric GI, he/she should be willing to refer you for the MBSS, that's where I finally got some help. As far as Luke's night sleeping, I don't honestly think it was majorly affected by any of this, however, he was only 4 weeks when the whole feeding nightmare began and 13/14 weeks when we started to thicken, so he was pretty young. However, he also tanked up at that last feed in the evening and I think that is helpful.
Sounds like things are headed in the right direction for you both. Keep me updated and let me know if I can be of more help!