Milk/Soy Protein Intolerance - MSPI - READ HERE!!!

[Stargrl]

and darnit, BK buns have soy flour in them 

[Stargrl]

OK, maybe I could have been clever and done this all in one post! But here's my total findings:

 In-n-Out: a plain hamburger w/o special sauce and french fries are OK.  There is soy protein in the special sauce.

McDonalds: nothing is OK (but we already knew this, right?) there's milk protein in the fries and soy flour in the buns. I guess if you can eat soy, you could eat a plain hamburger.

Burger King: fries are ok, buns are not

Jack in the Box: a plain hamburger or Jumbo Jack are OK (the mayo is fine, just contains egg) and regular or curly fries are OK. They have soybean oil, but again that should be fine since it doesn't have soy protein

the good news is that all this is very easily accessible now from their websites, I know this is new because I remember trying to find this info before and couldn't and just gave up.

[First Time Mom]

LOL, I had to laugh about your taco without cheese comment being "good news"! Isn't eating a taco without cheese kinda like... oh, I don't know...going on vacation to a sunny destination and having it pour rain everyday you're there?

[Stargrl]

haha! Now that's my idea of a vacation!! No, have you had Jack in the Box's tacos before? they're so yummy! I never knew they didn't have cheese (not sure if I should be disturbed or delighted).

[GraceKellysmom]

Hey Regina, have you tried Rice Dream's frozen desserts? They have some chocolate covered rice dream bars that are expensive but a very yummy treat!

For bread, I found the best bread at a local bakery and also Trader Joes has many basic breads that are dairy-free. Health food stores seem to carry breads with more simple ingredients and they are less processed and better for you anyway.

I have been posting some dairy/soy-free recipes to another post on this forum. Please add your recipes there! Only dairy/soy-free please! I need to find some good dessert type recipes to add. My dh makes the coffee cake from the side of the Bisquick box with rice milk and d/s-f margarine and I can eat the whole thing in a day! 

[kc456]

First post here -- my son (3 mo) may have milk protein intolerance.

Anyway, he never grew out of pooping with every feeding, and it's gotten pretty bad about a week ago. I finally realized that 3 months was too old to still be pooping with every feeding. Sometimes, esp at night, it feels like he needed to eat so that he can poop. So, a week ago he was up 3 times to eat (and poop), following a dream feeding (and pooping). So I had to change diaper at 9 PM, 12 AM, 3:30 AM, 5:30 AM, and he ate at 8 AM (and pooped).

At this point I began to suspect dairy and stopped eating it. I saw a big improvement right away.

I spoke to his pedi, and he said that 8-9 dirty diapers was not normal for his age and that it could be milk protein intolerance. He advised to go off dairy for two weeks, and then reintroduce and see what happens. Baby was always a frequent pooper, but I think I made it worse recently when I started drinking milk again.

In any case, he did not really have any symptons apart from frequent pooping. He's generally pretty happy and only fusses when he's tired. He spits up a lot but it's definitely not reflux and he's not bothered by it much. He did have greep poops that you guys mention, but I thought it was a normal variation in color (?). He does not have rashes.

It's a bummer because I love yogurt and it's a good source of protein, too. On the other hand, I'm already eating gluten free (I have gluten intolerance) and consuming very few processed foods, so it would be simply cutting out yogurt, cheese, and butter. It's not like I have to overhaul my whole diet, and I read labels all the time anyway.

The pooping situation continues to be much improved, yesterday last dirty diaper was at 1 PM, and he went for 14 hrs without pooping after that! I think it's contributing to him sleeping better at night.

Anyway, does this sound like MSPI to you? Should I ask my pedi to test him sooner? Also, how do I know that there's blood in the poop? I worry about the damage his intestines may have suffered while I was eating dairy. He's back to orange poops, so maybe the damage (if any) is pretty minimal?

[artistcoggin]

HELP!  I have forgotten what NORMAL poops should look like!  My 4 mo-old bf baby has 2-4 poops a day with 1-2 being blowouts while feeding.  Here's the details: they are RUNNY(Look ike diarrhea and often leak up her back out of the diaper), often frothy, yellow, sweet-smelling, but not mucousy.  She's never had a rash, and has consistently been gaining weight beautifully, even when she did have a little blood in her diaper. I've read that bf babies, as they get older have fewer and fewer poopy diapers.  Should I be concerned about the frequency?

Also, I also accidentally ate cheese 3 days ago, with no obvious reaction.  Could she be one of those that are intolerant to straight milk, but ok with cheese/yogurt?  If so, what should I try first--I'm so scared to mess with her little tummy.

Lastly, I'm TOTALLY new to posting, etc.  I have read all 17 pgs of MSPI posts and don't see anywhere else to post this, so just nudge me in the right direction if I'm off-track, please?  Thanks so much.  And thank you to all of you for your posts, I got a ton of good information and now I don't feel quite so alone in this.  It's been really difficult because NO ONE in either family has any food allergies/intolerances and so they all kind of look at us like we're just being paranoid 1st time parents.  It's so frustrating!!   Anyway, thanks again.

[artistcoggin]

BTW, I LOVE Rice Dream bars-- SO YUMMY!  But, I quit eating them because the GI specialist told me to stay away from ALL soy including soy lecithin.  What have you guys experienced in regards to that?  I saw a list of "safe" foods for MSPI, but many had either soy lecithin or soybean oil in them.

Lastly, I absolutely LOVE In-n-Out Burger.  I used to work there when i was in high school, so I know more than I should-lol, but seriously did you know they do NOT have a freezer?  Everything is shipped fresh several times a week!  I love that about them.  And if you're concerned about the buns you can order your burger "Protein style", which means they wrap your pattie in lettuce leaves an no bun.  It's actually not bad-kind of like a burger salad, a bit messy though.  Now... if we could just do something about their shakes...Ahhh how I MISS their shakes!! 

[GraceKellysmom]

Many allergen babies and intolerant people do ok with soy lecithin and even some soy (vegetable) oil. So that is what is behind the list, there are just very few people that have to cut that out too. It's kinda trial and error.

As far as pooping, lol, I think it goes under the category of "every baby is different" and you have to go by what's normal for your child. 8-9 poopy diapers seems like too many for a bf 3 month old baby. The blood test is for hidden blood (too small to see with your eye) They just smear a little poop on a card and send it to the lab. Pretty easy! If your giving up yogurt/cheese/butter for two weeks seems to help with the pooping and baby seems happier, it may be a worthwhile sacrifice to do for a while.

2-4 poops doesn't seem unreal for a bf 4 month old, but I remember Max only pooping once every 4-5 days and it was killer blowout. So I think that is "every baby is different" Frothy yellow seems to remind me of what his diapers looked like before solids. If you want to try yogurt, try a serving and see how the poops go. Cheese will be a little harder on your tummy, depending on how long you've been dairy-free.

[Cassie]

Just wanted to post a little update.  I drank soy milk on Monday morning and NO REACTION from Palmer!  WOO HOO!!!  I am praying that he has outgrown the soy intolerance.  I ate tofu chili today, so that should be the clincher.  If he tolerates it, then I am going to try giving HIM some soy next.  Stacy, how long did you wait to actually give your children the offending food once they tolerated YOU eating it??

There is light at the end of the tunnel!

[GraceKellysmom]

Hiya Cassie! Maybe a couple weeks? Although none of us eat soy, but I did trial Grace once a month from 12-18 months with yogurt until she could tolerate it fine. Organic dairy has always been tolerated easier by my family for some reason. 

Blech, tofu chili?? I have a great chili recipe I'm going to post on the mspi recipe post, just for you!

[Stargrl]

KC456-- I think that *does* sound like a lot of poopy diapers for a breastfed baby. I can't remember the exact # of dipes, but at 2-months is when we found out about DS's intolerance and about a week after cutting out dairy we were down to 1 poop a day, sometimes every other day. My doctor thought it wasn't related, but I noticed if he seemed to be reacting to something the # of poopies would go up. Also, it would be several smaller poopy diapers as opposed to one big 'un (if he were reacting). So yes, I think it's related to MSPI, but I'd ask the doctor if they could do a test for blood in his stool, that would be the clincher for me.

DS never had any weight issues, he was always on the big side, and his fussiness was never extreme but I noticed he seemed happier after I cut out dairy. As far as potential damage, I don't know how you could tell, but it's just a matter of nipping it in the bud as soon as you find out.  Some people never find out, depending on how astute their doctors are, until their kid starts eating dairy on their own.  I think that's probably more common in babies who are growing fine and seem otherwise healthy.  Oh, regarding the spitting up, I sorta think that my DS's spitting up was related to what I ate, but not sure if it happened to be developmentally coincidental or if it really had to do w/ cutting out the offending foods. Ya know? like maybe his stomach just matured or something. I remember always having to change his outfit or mine, and now I can't remember the last time I did (he's 7 months now).

Artistcoggin: the poops you describe sound normal in color/texture/smell. I think DS's smelled strongly of vinegar when he was reacting, and they were grass-green.  Hopefully the # will decrease as the dairy clears out of both of your systems, but like Stacy said some babies just poop more often than others. I had friends whose babies pooped once a week, and the most mine ever cut down to was once every 2 days, more often daily. And yes, I just love In-n-Out! That's awesome to hear that they don't even have freezers, I knew their fries were good since you see them put the potatoes straight into that fries cutter. I'm sad about the special sauce but I compensate by adding pickles  I could eat there 2x a week! My DH sure wouldn't complain!

-regina

[Cassie]

The Tofu Chili is AWESOME!  Even my husband will eat it, but I make it with meat too.  Just as delish.  So in 2-3 weeks I should try him on some soy yogurt?  I am not as strong as you and am planning on weaning him at 12 months.  I would feel better if I could give him a little soy formula as I don't think fruit/veges/meat and rice milk is going to cut it.  Grains still make him very constipated.

[GraceKellysmom]

You could try soy milk, it may be cheaper than formula. Grace weaned at 12 months and did soy milk (silk, unsweetened so as not to get her hooked on vanilla) until 24 months. I know we did soy cheese with her and a little bit of soy yogurt before switching to cows. I don't want to get into a debate about soy, but I'd rather my kids not have it unless necessary. It is often recommended to infertile couples to give up soy (because of the hormone connection) when trying to conceive.

[Cassie]

Yes I have read that, but if I can't give him dairy I would like to have some other options.  I would probably only use soy milk/formula before bedtime as he is still having some problems sleeping through the night.  When he wakes up he is STARVING.. I don't think rice milk and fruit is going to cut it. 

He was really crabby the next day after eating the Tofu Chili, but did fine after I drank the 8oz of soy milk.  Isnt' that strange??  I am going to chalk it up to teething or a cold (which he does have).  I am planning on giving him some soy yogurt in a few weeks.