Author Topic: Milk/Soy Protein Intolerance - MSPI - READ HERE!!!  (Read 181042 times)

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Offline First Time Mom

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #255 on: October 10, 2006, 02:30:09 am »
My ped told me that I have to give Milena soy formula (if I stop bfing) until age 2 as soy milk doesn't have enough nutrients in it (as long as she has her allergy). I would like to continue bfing when I go back to work, she'll be 13 mths old so I emailed Dr. Jack Newman and he said that there's no reason to introduce soy formula even though she can't have cow's milk products as long as I continue to bf even 2x a day. If they're eating a well balanced diet in all other areas and drinking some liquid (I give her water w/ her solids). What are your opinions on this? I'm not a fan of introducing soy formula if I don't have to but can't help wonder if bfing 2x is enough.

Cassie, could it have been the spices in the chili that made him crabby?
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Offline Stargrl

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #256 on: October 10, 2006, 03:01:49 am »
I'm not sure about if it's enough, but most of the 1.5-2 year olds I know who still breastfeed really only get a full feeding in morning & night, and sorta "snack" sometimes during the day, but regularly it's only 2x a day.  I personally hope to be able to bf til DS is 2, mainly due to the allergy/intolerance.

Here's a link to babycenter:
http://www.babycenter.com/refcap/baby/formulafeed/1334703.html#5

it talks about how much cows milk a baby that age would drink, 16-24 oz a day.  I guess 2x of 8 oz would be the minimum requirement, do you think she's getting that much in one feeding? I hope you're able to make that work for you!

Offline GraceKellysmom

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #257 on: October 10, 2006, 14:12:08 pm »
When Max was 12 months, I know he was getting 6-8 oz per feeding, twice daily. I sometimes would pump midday and get 8 oz easy. If they are drinking rice milk or water with meals too, that seems like plenty of fluids.

Cassie, yep teething makes food introduction harder. Mine sometimes got nasty poops when teething too..
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Offline First Time Mom

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #258 on: October 11, 2006, 01:11:50 am »
I haven't got a clue how much she's getting when bfing. I have never pumped (aside from trying in the hospital when she was born). Maybe when the time comes I will try to add a cluster feed in the evening- bf as soon as I get home and then again before she goes to bed. She's drinking some water now after her meal, I just bought more rice milk for myself today so maybe I'll try her with some to see if she likes it.
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Offline Cassie

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #259 on: October 11, 2006, 04:06:28 am »
Personally I think soy milk after the age of one is fine.  I was only thinking about doing the soy formula at night; however, after thinking about it I would probably just do soy milk.

It could have been the spices in the chili I guess.  I didn't make it very spicey, but you just never know.  I might try some soy milk (for me) again next week and see what happens.

Stacy.. I swear Palmer has been teething for the past 4 months.  The kid has 3 teeth on the bottom with a 4th one coming in.  Plus 4 teeth at varying stages of eruption on the top.  UGH.

This strange and I need all your advice.  I swear Palmer is reacting to the Gerber organic stage 1 peas.  He does fine when I make him peas (I usually use organic).  But when I give him the Gerber Organic ones he wakes up at night and does that tell tell swallowing thing he does when his reflux is acting up.  It is so weird.  It even happened last week when I gave him the mixed veggies that contained peas.  But he is perfectly fine when he eats the peas that I make him.  The ingredient label reads organic peas and water.  He tolerates all the other Gerber organics fine.  I am baffled.
Cassie (Formerly Duncan'sMom!)
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Offline artistcoggin

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #260 on: October 12, 2006, 04:44:52 am »
Well, Milla has been doing so well-I guess because I've been so careful what I eat, but I decided to experiment this week, so I had two bites of Apple Caramel cake from Costco and...Yay! No reaction.  BUT 3 days later, my mom had saved a piece of carrot cake for me, so I tried it and ate a bit more.  Guess what I totally forgot about?!?  The frosting--CREAM CHEESE!  Green poop that night!  She got over it quickly enough, thanks goodness, but that same night she got her FIRST COLD.  She had a temp and stuffy nose, but luckily the fever went down with some Tylenol and hasn't come back since.  Her runny nose is just clear so far, so I was just wondering, could this be because she's teething?  Because the same time the runny nose started, she started making these weird (but still cute-lol) faces--sticking out her tongue more than usual and moving her chin side to side, like she's rubbing her gums together.  I've heard that teething brings on a range of symptoms.  What have you all experienced? 

Also, what can I use as a butter sub for my toast?  Everything I've found has either soy or some form of dairy in it?  And have any of you had success substituting coconut oil for butter/marg in baking? 

Offline Stargrl

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #261 on: October 12, 2006, 16:16:06 pm »
bummer about the carrot cake! If you want to challenge soy or dairy, it's usually more accurate if you try something closest to the 'purest' form. So soy beans (edamame) or tofu (soy milk has a lot of additives) for soy, or milk for dairy.  Also, my doc said that dairy can take a while to clear both of your systems, 4-6 weeks sometimes, so even if you're being really good you might get a symptomatic diaper but it's just some old stuff flushing out.  Also if you have frozen expressed breast milk you may want to toss it, since you probably had dairy/soy in your body when you pumped. I'm glad she's doing well!

with teething, my DS started getting really fussy on the breast. I attributed nearly everything to his MSPI at that point, so I thought "Oh no! he's in horrible gastric pain due to my 'tainted' milk!" I was really freaking out about it, he would pull off and not eat and I was getting engorged... well, one of my friends asked "is he teething?" I thought she was surely wrong, since like I said I thought it was all about MSPI. Well, I looked in his mouth and saw a tell-tale bulge on his lower gum just the size of 2 teeth.  They cut the next week. But some babies stealth-teethe and you don't notice til you feel the sharp edges when nursing!

I don't know which part of the country you're in, I'm in California and Safeway has a brand of margarine called Nucoa which is MSP free.  It has soy oil & lecithin I think, but those are fine since they're fats. It states right on there that there is no milk, and I didn't see dairy at all in the ingredients.  Some have said Fleischmann's but I haven't seen that in any of my stores. I heard you can use Crisco for baking, haven't tried since I've used the Nucoa when I've made cookies. Just double check the butter-flavored one for casein or whey.

Offline GraceKellysmom

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #262 on: October 12, 2006, 20:10:59 pm »
Cassie, the pea thing is so strange! I would chalk it up to being a possible-milk-added food and just make him regular ones. How weird, but I will remember it. There are other brands of organic baby foods too, have you checked WF?

I always used Fleishmans for baking and a butter substitute. I don't like margarine, but since it is so short term, that is what I would use. Sometimes I would search and search at the grocery store reading every single label until I found one that was ok. I also use organic canola oil and sometimes applesauce for some baked goods. I would think coconut oil would really alter the taste and texture of recipes?

Teething can cause mucous diapers and runny noses, yes. Not usually green ones though, that is often foremilk balance issues.
Stacy, Mama to
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Offline Stargrl

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #263 on: October 12, 2006, 21:14:55 pm »
hey, Stacy I know you'd posted waaay at the beginning here that regular Oreo's were NOT ok, but mini's were. Well, I just looked at the ingredient list on regulars : http://www.nabiscoworld.com/Brands/ProductInformation.aspx?BrandKey=oreo&Site=1&Product=4400000820
Can you tell me which ingredient indicates milk or soy? I thought possibly vanillin, but looked it up online and from what I can tell it's just a synthetic form of vanilla, nothing indicated that soy or milk are usually used in the making of it. I appreciate it!

Oh, here's my continued update on Fast Food:

Taco Bell: the ONLY MSP free item is a bean burrito, with NO SAUCE. Not even rice. Can you believe there's soy in their taco sauce? I was so sad (and not soy lecithin either). Of course you can add lettuce & tomato to jazz it up a little, so it's not just beans in a tortilla. Everyone, please feel free to double check me though!

Del Taco: the only MSP free items were a plain hamburger and fries. Everything else had soy powder, soy protein, milk, yadda yadda. Even the "steak". I didn't check out the tortillas, because I'd asked about all the fillings first (beans, chicken, ground beef, steak) and I was like why would I just get a tortilla with nothing in it?! haha...

Offline SAHNE

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #264 on: October 12, 2006, 22:18:31 pm »
It's great to see so much interaction on the MSPI board! 

Just wanted to share that we ended up taking Carter to the Allergist this week after a hives episode at his 6 month check (so thankful that's where we were!) anyway come to find out he is allergic to milk and egg!  I had been nursing him and cutting out all dairy, soy and beef since he was 3 wks (dairy) and around 6 wks (soy, beef) and hadn't tried to eliminate egg.  Needless to say it was nice to discover why he was still having symptoms (mainly bad eczema in spots).  Still not sure why the hives at the dr, but timing was good as we were planning to do a flu shot (which contains egg and should not be given to him).  We ended up trying Alimentum for the past 10 days and he is finally clearing up completely and diapers are back to normal.  We've decided to leave him on this for a while, then try soy formula since his soy test came back 0.  He was a 2 for dairy and a 3 for egg.  They use a 0-6 scale, so his allergies were on the lower end and the Allergist was fairly confident he would outgrow them quickly.  I'm just glad we can finally start solids with a "normal" to work with.  We're starting with fruits as he reacted to squash and sweet potatoes, however these both tested 0 as well.

Just wanted to share my experience with all of you.  I am very sad to be done bf but feel it's best for the both of us.  I'm very glad to have a better understanding to start when it's time for #2!

artistcoggin - I was using Smart Balance Light as a spreadable butter replacement.  Make sure it's the light,
as regular smart balance has dairy.

Steph
-Steph




Offline First Time Mom

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #265 on: October 12, 2006, 22:28:48 pm »
Quick note on the toast- try apple butter (no butter is actually in it), yummy! If I have bread with a meal instead of butter I dip in oil and balsamic vinegar. BTW, make sure to check your bread as lots of breads contain some form of milk.
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Offline Ami ~ 3 girls' mom

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #266 on: October 13, 2006, 02:57:14 am »
May I ask your ladies' professional opinions?   :)  (insert wave to Marian)

I've suspected Savannah has allergy to milk protein ~ as a newborn she had eczema and colic.  At 9-1/2 months old she has yet to sleep through the night.  She gets up and sometimes it's obvious she's in pain (I've always explained it with teething or being overtired) but she's usually fairly easy to get back to sleep.  Naps are absolutely wonderful.

The lack of nighttime sleep has been getting to me though so I'm eliminating dairy from my diet to see if there is an improvement.  I've got the 'major' stuff cut out but I think little things are slipping by.  Last night and tonight have been horrible with nightwakings.  She wakes up screaming, trying to climb out of my arms.  Absolutely nothing will calm her; she has to collapse from exhaustion.  Her voice is hoarse from all the crying.  :(

Does this sound like a reaction to dairy?  Is it possible to go this long bf her with no detailed attention to cutting out dairy and then have this happen?

Thanks.  :)

Offline GraceKellysmom

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #267 on: October 13, 2006, 03:04:16 am »
Stargrl - I thought the regular Oreo's were the ok ones? Now I am confused too. The only suspect thing on that list for me is "chocolate" I can ask at another forum, there is a mom with a kiddo who is truly Allergic (not intolerant) to like 16 things and Oreos are on her safe list, amazingly.

If you have a restaurant called Chipolte, you should check them out. I used to eat their vegetarian burrito (no cheese, sour cream) and it is full of guac and yummy. I haven't checked their ingredients for a while.

I thought the 7 layer burrito (what I ate tonight, yum) from Taco Bell was ok. The rice has soy in it? What a crock! I think I am going to get a bumper sticker that says "Soy SUCKS!" We need to start a revolution.

FWIW to very last poster, my kiddos both had AWFUL sleep issues at 9.5 months. Don't know what it was, but at 10 months my first started sleeping all night and at 11 months my second called back down to one night waking. I am not the sleep expert but I know many of our night wakings were teeth related and also physical milestone related (waking up because of tingly legs from getting ready to crawl/pull up/walk)
Stacy, Mama to
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Offline SAHNE

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #268 on: October 13, 2006, 03:08:34 am »
I love CHIPOTLE veggie burritos with guac!! ;)
-Steph




Offline Stargrl

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #269 on: October 13, 2006, 15:06:17 pm »
yumm. Chipotle. I just e-mailed them to see if their steak & chicken are ok. I just wish they'd take mercy on a poor soul who can't eat the cheese/sour cream that is a standard on their burritos, and give me free guac. I've tried but the person behind the counter just doesn't see my logic. "If you want to ADD guac, you can pay an extra $1.50!"--helpfully.  Me: "oh. I see. But you see, I can't have the sour cream and cheese, so..."  Person behind counter stares at me with a blank expression until I pass down the assembly line...  ;)

Stacy, here's the link to what caused the oreo confusion in the first place:
https://babywhispererforums.com/index.php?topic=66236.0

it's about 3/4 down the page.  I'm hoping they're fine, it's so nice to get a ready-made cookie when you're out & about.

-regina