Milk/Soy Protein Intolerance - MSPI - READ HERE!!!

[Mydreamcametrue]

I guess I will call the company and double check.  The biscuits do list butter, but not the cresent rolls

[murkywaters]

Please share their responce?

[murkywaters]

Someone said that Cool Whip is Ok (no milk) can anyone second that (having tried it)?
I'm just starting out on this journey through 'no milk land' with my LO.  Still gathering all info that I can. 

[binxyboo]

I am sure even the dairy free Cool Whip has derivatives in it...I think I was disappointed about this discovery back in my vegan days, but maybe it has recently changed.

I found this and thought it might be helpful http://www.kjsl.net/~beanmom/nomilk.html

[SAHNE]

Hi all!  It's been a while since I've been on here - hope you are all doing well!  I was just curious when other MSPI babies were able to tolerate rice cereal.  DS is 9 months and the drs. have been telling me to wait (I haven't talked to them in a month or so though), but he is so hungry all the time, I need to find something else to feed him!  Let me know if you can!

Thanks,
Steph

[ks6]

Just jumping in on the Cool Whip thing--it's lactose free, but still has milk protein.

[pinkkitten]

Hi All,

I wonder if you guys can help.  My 4.5month old son is fabulous and in good health - EXCEPT - in the night he wakes time and time again.  He starts writhing in pain whilst still sleeping and if I give him his dummy he can sometimes pass wind and then settle.  It begins again about half an hour/an hour later and it all begins again.  Sometimes if he cant get the wind out of his bottom, he cries so much he ends up awake.
I've tried EVERYTHING, down to putting him on Neacate and Neutramigen incase its an intolerance, but he REFUSES to drink them and spits them everywhere and ends up starving.  I don't blame him, they taste awful compared to the milk he usually eats.
I've tried waiting till he's ravenous, but he just will not eat it. 

Anyway, my question is, is this milk/soy intolerance or if that was the case, would he be sick too?

Sorry so long, but I am at the end of my tether here!

Thanks for reading!

Amanda

[First Time Mom]

Steph, I had Milena on rice cereal from 6 months, I used one with no milk (from what I remember when reading labels, the Nestle one DOES have milk), I used water to mix it with as I bf but never pumped. She had no problem with the rice cereal, had a rash/reaction with the brown rice and the oatmeal rice but was able to eat both at 9 months.

Amanda, have you ever tried Oval drops? When my dd was super young she had the typical problems with gas and I found these helped. I'm not sure about lactose intolerance as my dd's was a full blown protein allergy (she always had severe pain and blood in her diaper). How is he in the daytime with his formula? What are his poops like? Usually the protein allergy results in bleeding intestines, abdominal pain, irregular and mucousy poops and intollerances result in poops that are not regular, excess gas, and sometimes rash or even excema.

Milena update- she's doing well with one container of plain yogurt a day and about an ounce of cheese. We were up to 12 oz of whole milk per day but she had loose and stinky poop that looked like her food going in. Have taken her off the milk and retried each week. I'm thinking she's over her "allergy" because she can now handle cheese and yogurt and I'm eating EVERYTHING with milk again and she is not reacting and has had no blood in her diaper. I'm now wondering if she's developed a lactose intolerance which, if she has, I'm not too worried about, it's so much better that the full blown protein allergy!

[SAHNE]

Hi Marian.

Thanks for the info... I got some organic rice cereal - I think I'll go ahead and try it.

Glad to hear things are going well for Milena - good to hear of things getting better in time!

Steph

[ashti]

Amanda-
I'm sorry to hear your lo is having such trouble.  I agree with Marian that if it were milk intolerance you'd see other symptoms besides gas and wind.  Does he have diarrhea or bloody or mucousy stools?  How is his skin?  Does he have a lot of congestion?  I hope you find the reason he is suffering soon.

Well, we had our allergy test done yesterday.  It wasn't as bad as I thought it would be.  Dd did so well.  I was so proud of her.  She tested allergic to milk, nuts, and eggs.  So now eggs and nuts are out of my diet too.  She was still intolerant to soy at 10 months (now 13 months).  The allergist wants her on soy formula, since she didn't test allergic to it.    I'm thinking this is one of those times where I should just ignore his advice and trust my instincts that she is still intolerant.  Dh wants to try it, see if she is still intolerant.  I'm just not sure what to do.

[Mydreamcametrue]

ashti:  I WOULD GO WITH YOUR INSTINCT!!!!  TRUST ME!!!

My 16 month old tested (+) on the skin prick test at 9 months, so we always avoided soy.  We realized later that he was intolerant, not allergic to milk. 

So before trying rice milk, we had him tested again.  This time is was a blood test and it was (-) to soy.  So we took our doctors advice and did the soy milk.  BIG MISTAKE!!!

Things were worse with the soy than the milk.

Like your husband, he wanted to try it though.  Go with your instincts.  A mother always knows best...

Good Luck.

P.S:  If you need advive on Rice milk, that is what we are doing now.  8 oz. of enriched rice milk mixed with 2 oz. of cocunut milk (for the fat) and MLO Rice Protein (for the protein).  I also mix a tablespoon of strawberry nesquick for the flavor.  He loves it.

Wendy

[murkywaters]

Amanda
Mine started with a full torso skin rash then with the windy restless nights then bloody stool.  If your LO has no rash she may just be gassy if she has a rash also you may want to keep an eye out for blood in her diaper check close every time you change her and make sure if anyone elts is changing her that they are on the look out. 

[First Time Mom]

Just wanted to add about the bloody stool, the hospital told me that in some cases the blood in the stool may be microscopic so, not visable to the naked eye, that's why they recommend testing the stool for blood. In my dd's case the blood was very visable.

[Rebecca247]

hi, just wondering if there is a certain age that kids can get MSPI or outgrow it if they already have it. I'm having alot of trouble with DD aged 3 I have recently received blood test back ruling out all environmental things for causing eczema but I kind of knew it wasnt environmental, I have always been very weary of dairy because thats her main diet is based on dairy, she drinks alot of cows milk and eats alot of yogurts, custards and cheeses... She has been constipated on and off alot since birth, she couldnt tolerate most formulas and was on cows milk at an early age but had to go to soy, she has alot of trouble going to the toilet, I have now put her back to soy milk, could she be MSPI?

[GraceKellysmom]

Rebecca247, I'm sorry hon, I don't understand completely. Is it the constipation or the skin problems that are making you wonder?

Yes, at 3, she could be having reactions to either milk or soy. If you eliminate milk completely for a few weeks, and are on soy, and she still has excema, I would ask the doctor for a food allergy test. You could also consider what soap/shampoo/laundry detergent you are using on her. I know that some excema can't be healed, but some can, and I'd rather omit the offender than cover it up with meds or creams.