Author Topic: Milk/Soy Protein Intolerance - MSPI - READ HERE!!!  (Read 96950 times)

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Offline vickymeek

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #435 on: March 21, 2008, 22:01:12 PM »
Can anyone help me? My son is dairy intolerant - has bad wind, diarrhea, pain in tummy when exposed to milk proteins (I posted a few weeks ago that we'd just discovered this). I've been trying to get him on to a formula that he can tolerate. We've tried Nutramigen, but he got diarrhea and a rash and we've now been on Neocate for 5 days. He was OK at first, but he has just had a pretty bad day where the longest he slept was 20 mins, he was so uncomfortable with wind. He's been crying a lot since we've started trying the hypoallergenic formulas.

How long should we give it (ie, does the wind subside as the tummy gets used to the new formula and if so, how long should that take)? Is it possible that he won't tolerate any formula (the Paed gastro specialist told me yesterday that wasn't possible, but I'm not so sure)? If he doesn't tolerate the HA formulas, how likely is it that he'll tolerate soy formula? And is it normal for babies with this intolerance to cry a lot for an hour or two before passing stools and whenever they have wind?

Offline motherof3

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #436 on: March 24, 2008, 00:58:22 AM »
I would def give the Neocate more time.  It can take up to 2wks to get all the proteins out of his system from the Nutramigen.  Does he have any other health issues, like reflux??


Andrea
Jackie 3/10/01
Payton 9/23/03

Offline vickymeek

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #437 on: March 26, 2008, 16:21:30 PM »
Thank you. Unfortunately, I've already given up on the Neocate. Our lives were just too miserable. However, even on dairy-free breastmilk, we're still having problems - I've just got him to sleep after five hours of solid crying. I just don't know what to do. I'm trying to get a referral to an allergy specialist, but concerned that if it's an intolerance, it just won't show up on any tests. I've had nil support from the medical profession and am coming to my own (possibly wrong) conclusions. He may have silent reflux, but I just don't know....

He's seven months old now and I'm tearing my hair out trying to find an explanation for his apparent pain and copious amounts of wind. :'(

Offline Jimbob

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #438 on: March 26, 2008, 19:31:24 PM »
First of all I am sorry that your lo is suffering so much and that you are just not getting the help that you need. Which country are you from? The only reason I ask is that once we know somebody from the same country may be able to give you tips on the best way to get the medical profession to listen.

Kelly



James has atopic eczema, multiple food allergies, asthma and late talker

Offline motherof3

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #439 on: March 26, 2008, 23:11:29 PM »
How long was he on the Neocate before you gave up?  If he could possibility have reflux also that can def compound the problems.  A lot of babies with reflux also have MSPI and lots of gas and endless burps.  I am so sorry that you aren't getting any help from doctors.  I would def try and get an appt with a pedi GI.  I know that these are hard to come by in other countries but they have the most expertise in dealing with reflux.  If you think it he might have it. 

Andrea
Jackie 3/10/01
Payton 9/23/03

Offline Ennypen

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Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #440 on: March 27, 2008, 09:49:12 AM »
Hi guys.. due to our 30 page thread length limit I am locking this one and making you a brand new one... part 2..

You can find it here.. Milk/Soy Protein Intolerance (MSPI) Part 2
« Last Edit: March 27, 2008, 09:52:07 AM by Ennypen »